Hello world!

Well, where to start??? My youngest daughter turned 4 months on the 21st December and I finally feel ready to tell the world what’s happening in our lives.  Ellie was born with Aplasia Cutis.  I’ll soon update you with more info about it etc but for now I just want to get started with this blog.  Monday was the first time I’ve ever googled the condition and I couldn’t find many ‘real’ people telling their stories (just alot of doctor stuff), so I hope that someone who is going through this will come across my blog and find something to relate to and try and find the funny side in our shared situation to make it easier to accept.

I’ve been told that others have it so much worse (which is true) and this is the way I’ve tried to look at our situation, but both J and I feel that it’s OK to say that even though it could be worse, that what’s happened to our beautiful girl is still so hard for us (and in the future – her).

When Ellie was born I kept a diary while she was is NICU.  I think the easiet way for me to tell you our story is to start with that first diary entry.  It’s a long one, so keep checking in to see it being updated….

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