Putting it in perspective
Brenna likes to play in Ellie’s room and make a big mess (of course – what 3 year old wouldn’t??). This morning she came out with some of the spare dressings we had left over from the ‘olden days’ lol. Looking at them has made me realise how small the scab is now! I decided to take some photos of the dressings compared to my hand to put it into perspective how large that area on the back of her head was to start with.
This photo is of the cuticerin (like a parafin gauze…this was the first layer of the dressing that didn’t cover the diamond area at the back to start with)
This next photo is the Melonin. This was the non-stick covering that went over the Cuticerin. This only just covered the area. Over the top of these two layers we put on the bandage made out of surgifix (a stretchy tube stuff).
Ellie is alseep at the moment, but when she wakes I’ll take a photo of her head beside the melonin so you can see the progress. It’s also nearly been a month since the latest scab piccie.
I’ll do monthly scab photos to keep you updated 
3 Responses to “Putting it in perspective”
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Hi Anna, I found your blog doing research on aplasia cutis. It has become one my favourite pastime
as my son is also affected by this rare disorder… He turned 1 last week and his head is still healing (his scab was a HUGE one, docs said). Unfortunately, he also has a bone defect. Ok, this was the bad piece of news… For all the rest, he’s an amazing kid: so lively and cheerful! As for me, I write from Italy and work(ed) as a teacher. I really hope to share experience with you during this long ahd hard journey.
Sara
I’m so pleased you’ve come across my blog Sara. This is what I was hoping to achieve…the get in touch with others who are going through the same thing. Do you have a blog? I’d love to know more about your story. Please keep in touch. Is the bone defect on his skull?? Was he given a brain scan after birth?? (I could ask soooo many questions!)
Hi again Anna, I don’t have a blog, but if you have any questions you can e-mail me. The bone defect is on the skull and was quite large a birth. Now it is narrowing a bit, but he still has two “holes”: one where the soft spot should be (docs think this one might close on its own over the years) and the other more in the back. Now that he’s beginning to toddle we’re really scared he may hurt himself… As for the examinations, he had a CAT scan at birth, then MRI and MRA in October to see how the brain was developing and to check all veins and sinuses. If you give me your e-mail I can send a pic of his head. Bye for now.