4-6 weeks???? More like 4-6 months!!!
December 28th, 2009
Here’s Ellie’s head at 4 months…
4 months
When we left the hospital, they told us it would be healed and scarred over in 4-6 weeks….obviously we’re still waiting for that to happen. I’m sure they must have known that it wouldn’t heal that quickly. I’m pleased that back then I didn’t know how long this would take or we would have struggled more than what we already did (that’s a whole story for another day).
We are now on 3 monthly visits with the dermatologist until she turns 1 then we’ll find out more info about when surgery will happen. I badly want all the answers now…
- How many operations will there be?
- How large will the saline balloons get?
- How long will the balloons be under her scalp for?
- Will the balloons be painful for her while they’re being inflated?
The doctors must be wanting to test my ‘must know everything now’ syndrome…they are doing a great job of it too!!
test Filed under The Head | Comments (5)5 Responses to “4-6 weeks???? More like 4-6 months!!!”
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In this gorgeous blog, the balloon operation technique is explained step by step http://isaiahupdates.blogspot.com/
I’m also member of this group http://www.aosupport.org/. It deals with Adams-Oliver syndrome. My son isn’t affected by it, but aplasia is the most common problem with these kids. In the forum section you can find lots of info about dressings and so on.
Sara
Wow, thank you so much for showing me this blog. The step by step photos of how the operation will be makes me feels scared, but it’s exactly what I’ve been wanting to know.
Hi there, I’m Zay’s mom
I’m so happy to “meet” your Ellie, she’s just precious! Seeing her head brings back so many memories. Her scabs/scarring looks just like Zay’s did. If you have any questions that I didn’t address in the blog please feel free to ask me. You can e-mail me or use the comment feature on his blog anytime. Good luck!
Oh wow…I saw the photos of his surgery. It’s amazing but also scary. I’ve got heaps of Q’s so will keep in touch. Thanks for reading about Ellie
It really is scary, and it’s hard to see your baby so uncomfortable and in pain. I really feel like it would have been better to have done the surgeries when he was much younger, but we couldn’t find doctors willing to do it. I suspect that Ellie will have a much easier time of it than Zay did because of her age. I hope you do keep in touch, and thank you for sharing Ellie’s story